You know that there are many people with the expertise and experience to help your child. But only you have access to the vital information that they need in order to help.1
Keeping a seizure diary may help your doctors design or modify a treatment plan. It's a good way for you to see if a treatment is working and to keep track of any medications or important side effects.1 Here's the information you should be keeping track of to share with your healthcare team:
- Date and time of seizures
- Type of seizure
- Any possible triggers
- Date, time, and dosage of all medications
- Any side effects
- Behavioral or mood changes
Keeping a seizure diary may help your doctors design or modify a treatment plan.
The more details you can provide, the better your healthcare team can tailor your child’s treatment to his or her needs. You can record this information in a notebook, or you can use one of many electronic versions available, like the one at seizuretracker.com.
Despite your efforts, finding the right treatment for your child may not be easy. There are many options available, and what works for one child may not work with another. Sometimes multiple treatments are necessary. For example, people with Lennox-Gastaut syndrome (LGS) often have to take more than one medication to get the right level of control.2
- 1. Phillips L. Dear seizure diary: how and why to record your epileptic seizures. Neurology Now. 2009;5(6):35-36.
- 2. Arzimanoglou A, French J, Blume WT, et al. Lennox-Gastaut syndrome: a consensus approach on diagnosis, assessment, management, and trial methodology. Lancet Neurol. 2009;8:82-93.