This section provides a basic overview of some approaches and treatments that may help reduce the seizures associated with Lennox-Gastaut syndrome (LGS).
A goal of treating LGS is to reduce the frequency of seizures with treatments that can cause the fewest side effects.1 Finding the best treatment for your child may require trying different medications, getting a second opinion, or exploring other options such as surgery and diet. It is believed that the sooner seizures can be controlled, the better off a patient may be in the long term.2
Always consult with your healthcare team first
Keep in mind that treatments don’t work the same for everyone. Please consult with your healthcare team, who will take your child’s specific needs and your goals and concerns into account. Whether you are new to an LGS diagnosis and want to learn more or are unsatisfied with your current treatment plan, there are questions to ask the neurologist about treatment options. These may help with your discussion about LGS and its management:
- Are there certain treatments available to help with the specific types of seizures my child is having?
- What are the potential side effects of these treatments? Are there other treatments available? Is there any way to anticipate and/or avoid the side effects?
- Can diet or surgery also help in controlling seizures?
- What are the risks involved with the treatment options available?
- How soon could the treatments work? What changes should I be looking for?
- What kind of follow-up is required for my child?
- Are there any other symptoms that I might need to pay attention to, other than the seizures themselves?
- What are the things I should expect to happen, and how can I receive help in caregiving? What is the expectation in the long term?
- Will my child/loved one ever get better?
Whatever course you take, remember that you have the ability to make a difference for your child and for your family. By being informed, you have already taken an important step. And if you still want to learn more—or are just in need of some inspiration—check out our video Navigating the Storm.
- 1. Crumrine PK. Lennox-Gastaut syndrome. J Child Neurol. 2002;17(suppl 1):S70-75.
- 2. van Rijckevorsel K. Cognitive problems related to epilepsy syndromes, especially malignant epilepsies. Seizure. 2006;15:227-234.