LGS Treatment Option
Find out about a prescription treatment that may help reduce seizures associated with LGS.
The topic of future care can be overwhelming for a parent of a child living with Lennox-Gastaut syndrome (LGS). But the reality is, there may come a time when parents are unable to provide the necessary care. There are several different options for continued care that can be helpful when making this important decision:
Some adults living with LGS choose to live independently, alone, or even with roommates.1
Often called "group homes", residential facilities are usually staffed and funded by the social services sector.1
Some adults continue living with a family member or with their parents.1
Some adults live in the home of a foster parent who can ensure they have regular supervision and care.2
Taking steps now to plan for your child's future can give you comfort knowing he or she will be well cared for. Depending on the state, or even the city or county you live in, there may be several assisted living options available.1
Long-term financial planning is essential in order to ensure that your child will receive continued support should your circumstances change or if you are no longer able to provide care. It's important not to put this decision off because it can help avoid difficulties in the future.3
Be sure to familiarize yourself with your child's health insurance policy before he or she enters adulthood. When your child turns 18, different medical and nonmedical rules are used to decide if he or she can qualify for Social Security Income (SSI) or Medicaid disability payments.3
It's important to establish guardianship for your child. By establishing yourself as the legal guardian for when your child turns 18, you will have the ability to legally handle his or her assets and make decisions that are in your child's best interest despite his or her legal status as an adult.3
Lastly, develop a financial plan that best represents the interests of the person living with LGS. A parent can set up3:
This Web site contains information relating to various medical conditions and treatment. Such information is provided for educational purposes only and is not meant to be a substitute for the advice of a physician or other healthcare professionals. You should not use this information for diagnosing a health problem or disease. In order for you to make intelligent healthcare decisions, you should always consult with a physician or other healthcare provider for your, or your loved one's, personal medical needs. All quotes included in this Web site represent the individual experience of some doctors, some patients, and their caregivers. Individual responses to treatment may vary.
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