Caring for the caregiver
When you're caring for someone with Lennox-Gastaut syndrome (LGS), it's
important to remember that there are ways to share the responsibility.
This gives you the option to stay at home with your child while a provider helps with other daily tasks. You could have in-home respite occasionally or on a regular basis.1
Hospitals, group homes, and nursing homes can give you 24-hour relief by providing emergency or planned overnight stays.1
This is usually the least expensive option, much like hiring a nanny. Of course, you will need to do some research. Before hiring an independent provider, it's important to conduct in-depth interviews and request references.1
Home care agencies
Often easier to use than an independent provider, these agencies place a caregiver with you, handle payroll, and can provide a replacement when a provider is unavailable. They also conduct background checks and take care of issues like medication, complaints, or arbitration.1
- 1. LGS Foundation. Adults and LGS. LGS Foundation Web site. http://www.lgsfoundation.org/adultsandlgs. Accessed October 21, 2019.