Adapting to change

As your child transitions into adolescence and then into adulthood, health issues associated with growth and development that are faced by everyone can take on added urgency.

Growth and development

Familiarize yourself with the changes that might occur in your child, so you can best prepare and avoid difficulties down the road.

Multiple seizure types may continue and even change.

As a child with Lennox-Gastaut syndrome (LGS) grows into adulthood, seizure types (and their corresponding electroencephalographic [EEG] A test for diagnosing epilepsy. The EEG records electrical activity in the brain. Small, metal disks are attached to the scalp and connected by wires to an EEG machine. The machine records brain activity as a series of lines, each related to a different part of the brain. patterns) can change. When this happens, the overall treatment regimen including the choice of antiepileptic drugs (AEDs) and their dosages may also need to change.1

Behavioral issues in children with LGS can present challenges to parents and caregivers.

These behavior problems can include hyperactivity, emotional instability, aggression, autistic features, or antisocial personality. Talk with your healthcare team about how to approach potential changes.1

Cognitive abilities can be affected as a child with LGS moves into adulthood.

Most people with LGS may experience some impaired intellectual functioning or information processing, along with developmental delays and behavioral problems.2

The mobility of a person living with LGS may change as he or she begins to increase in height and weight.

Daily tasks such as bathing and transportation can become more of a challenge for caregivers. For individuals with LGS who become wheelchair bound, changes to the accessibility of the home and vehicle may be necessary in order to accommodate the wheelchair.1

Learn how to prepare for adult care of people with LGS

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References:

  • 1. LGS Foundation. Adults and LGS. LGS Foundation Web site. http://www.lgsfoundation.org/adultsandlgs. Accessed October 21, 2019.
  • 2. LGS (Lennox-Gastaut syndrome). Child Neurology Foundation Web site. https://www.childneurologyfoundation.org/disorder/lennox-gastaut-syndrome/. Accessed November 22, 2019.