Transition of care

As a child with Lennox-Gastaut syndrome (LGS) grows into adolescence and then adulthood, he or she might experience unique challenges and changes. These changes, in turn, will have effects on decisions around overall care. Making the move from a pediatric neurologist's to an adult neurologist's care, for instance, can be challenging for both the person living with LGS and the caregiver.1

This section of LivingWithLGS.com provides an overview of the transition process. But as you'll learn, there is more to transitioning than just a change in doctors. The pages that follow highlight important areas of focus.

It's important to begin the process early so that by adolescence, everyone is prepared for the inevitable changes—and the process.1

Transitioning is not a single event. It's a process.1

Successful transition depends on close coordination among the key players involved: the pediatric neurologist, the family, the person with LGS, and the adult neurologist. All parties must commit to making transition planning a basic part of providing care, not something that comes into play only when a person living with LGS turns 18.1

Learn how care and concerns change as a child with LGS gets older

See more from this series

Sign Up for LGS Family

Sign Up for LGS Family

Receive educational information that can help you care for your child or loved one with Lennox-Gastaut syndrome (LGS).

Sign up now >
LGS (Lennox-Gastaut Syndrome) treatment options

LGS Treatment Option

Find out about a prescription treatment that may help reduce seizures associated with LGS.

Learn more >

Reference:

  • 1. LGS Foundation. Adults and LGS. LGS Foundation Web site. http://www.lgsfoundation.org/adultsandlgs. Accessed October 21, 2019.