Transition of care
As a child with Lennox-Gastaut syndrome (LGS) grows into adolescence and then adulthood, he or she might experience unique challenges and changes. These changes, in turn, will have effects on decisions around overall care. Making the move from a pediatric neurologist's to an adult neurologist's care, for instance, can be challenging for both the person living with LGS and the caregiver.1
This section of LivingWithLGS.com provides an overview of the transition process. But as you'll learn, there is more to transitioning than just a change in doctors. The pages that follow highlight important areas of focus.
It's important to begin the process early so that by adolescence, everyone is prepared for the inevitable changes—and the process.1
Transitioning is not a single event. It's a process.1
Successful transition depends on close coordination among the key players involved: the pediatric neurologist, the family, the person with LGS, and the adult neurologist. All parties must commit to making transition planning a basic part of providing care, not something that comes into play only when a person living with LGS turns 18.1
- 1. LGS Foundation. Adults and LGS. LGS Foundation Web site. http://www.lgsfoundation.org/adultsandlgs. Accessed October 21, 2019.