When you discover that someone you love has Lennox-Gastaut syndrome (LGS), your search for information and support begins. Though LivingWithLGS.com is here to provide resources for the LGS community, it is not the only source of information on the Web. Many outstanding epilepsy and LGS support sites exist to help you find insight into the treatment of this disorder.
General epilepsy and LGS information
Caring for a Child with Epilepsy
Tips for safety and emotional adjustment
The Charlie Foundation
Information on the ketogenic diet
Epilepsy Foundation
A national nonprofit organization dedicated to epilepsy
Individuals with Disabilities Education Act (IDEA)
Information from the Department of Education
LGS Foundation
A nonprofit organization that provides information and support to LGS families
National Center for Complementary and Alternative Medicine (NCCAM)
Part of the National Institutes of Health devoted to alternative medicine
National Organization of Rare Disorders (NORD)
A federation of voluntary health organizations dedicated to helping people with rare diseases
Assistance
The ARCH National Respite Network and Resource Center
Assists and promotes the development of quality respite care programs
There are also many online communities of parents and caregivers of people with LGS. Search "LGS Epilepsy," "Lennox-Gastaut syndrome," etc, on Facebook and YouTube to connect.
