Helpful links

When you discover that someone you love has Lennox-Gastaut syndrome (LGS), your search for information and support begins. Though is here to provide resources for the LGS community, it is not the only source of information on the Web. Many outstanding epilepsy and LGS support sites exist to help you find insight into the treatment of this disorder.

General epilepsy and LGS information

Caring for a Child with Epilepsy

Tips for safety and emotional adjustment

The Charlie Foundation

Information on the ketogenic diet

Epilepsy Foundation

A national nonprofit organization dedicated to epilepsy

Individuals with Disabilities Education Act (IDEA)

Information from the Department of Education

LGS Foundation

A nonprofit organization that provides information and support to LGS families

National Center for Complementary and Alternative Medicine (NCCAM)

Part of the National Institutes of Health devoted to alternative medicine

National Organization of Rare Disorders (NORD)

A federation of voluntary health organizations dedicated to helping people with rare diseases


The ARCH National Respite Network and Resource Center

Assists and promotes the development of quality respite care programs

There are also many online communities of parents and caregivers of people with LGS. Search "LGS Epilepsy," "Lennox-Gastaut syndrome," etc, on Facebook and YouTube to connect.