As your child grows into adolescence, you may discover new issues when dealing with Lennox-Gastaut syndrome (LGS). Seizures may change. But the need for care does not go away.
As children with LGS get older, certain partial and generalized tonic-clonic seizures may become more common.1 Also, signs of irritability, aggressiveness, or social isolation may occur. It is important to be aware of these possible symptoms in order to prepare for adequate care.2
Treatment should be reassessed with age.
A teenager or adult who has been living with LGS should be assessed differently than a 4-year-old who was recently diagnosed.3 As your child gets older, you will need to work with your healthcare team to determine when it is best to transition from a pediatric neurologist to an adult neurologist.
Your child’s education, level of independence, and potential for social interaction and personal relationships may become more of a concern as your child enters adulthood.3 Positive or negative behavioral changes (or the potential for them) and their impact should also be considered.3 Weighing the benefits of improved seizure control will always be key.3
The process of learning and adapting may be continuous for you and your family. You know that an education plan and healthcare team that works for one child may not work for another. LGS treatments are the same way. There are several options, and they all come with pros and cons. But before any of them can work, you must be willing to try different things and follow your healthcare team’s instructions carefully.
- 1. LGS: seizure types. Epilepsy Foundation Web site. https://www.epilepsy.com/learn/types-epilepsy-syndromes/lennox-gastaut-syndrome-lgs/lgs-seizure-types. Accessed October 21, 2019.
- 2. LGS Foundation. Adults and LGS. LGS Foundation Web site. http://www.lgsfoundation.org/adultsandlgs. Accessed October 21, 2019.
- 3. Arzimanoglou A, French J, Blume WT, et al. Lennox-Gastaut syndrome: a consensus approach on diagnosis, assessment, management, and trial methodology. Lancet Neurol. 2009;8:82-93.