About LGS

Lennox-Gastaut syndrome (LGS) is not a well-known disorder. Although some people may be familiar with epilepsy or seizures in general, most haven’t heard of LGS.

LGS accounts for 1% to 4% of all childhood epilepsy cases.1

LGS is usually characterized by2:

  • Multiple seizure types
  • An EEG A test for diagnosing epilepsy. The EEG records electrical activity in the brain. Small, metal disks are attached to the scalp and connected by wires to an EEG machine. The machine records brain activity as a series of lines, each related to a different part of the brain. with a slow spike-wave pattern between seizures
  • Cognitive impairment or developmental delays

Because LGS is so rare, you’re probably here because someone you love has LGS. Whether you are a concerned parent wondering what to do, or a friend that just wants to learn more, you’ve found a great place to start. 

LivingWithLGS.com is here to help you get an understanding of LGS, to provide information regarding various treatment options, and to make valuable resources available. 


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Doctor Discussion Guide

Be sure to ask the questions most important to you every time you visit the doctor.

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LGS Treatment Option

Find out about a prescription treatment that may help reduce seizures associated with LGS.

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  • 1. Crumrine PK. Lennox-Gastaut syndrome. J Child Neurol. 2002;17(suppl 1):S70-75.
  • 2. Shafer PO, Kiriakopoulos E, Sirven JI. LGS: characteristics. Epilepsy Foundation Web site. https://www.epilepsy.com/learn/types-epilepsy-syndromes/lennox-gastaut-syndrome-lgs/lgs-characteristics. Updated November 2014. Accessed November 27, 2019.