Adapting to change

As your child transitions into adolescence and then into adulthood, health issues associated with growth and development that are faced by everyone can take on added urgency.

Growth and development

Familiarize yourself with the changes that might occur in your child, so you can best prepare and avoid difficulties down the road.

Multiple seizure types may continue and even change.

As a child with Lennox-Gastaut syndrome (LGS) grows into adulthood, seizure types (and their corresponding electroencephalographic [EEG] patterns) can change. When this happens, the overall treatment regimen including the choice of antiepileptic drugs (AEDs) and their dosages may also need to change.1

Behavioral issues in children with LGS can present challenges to parents and caregivers.

These behavior problems can include hyperactivity, emotional instability, aggression, autistic features, destructive behaviors, antisocial personality, or hypersexuality. Talk with your healthcare team about how to approach potential changes.1

Cognitive abilities can be affected as a child with LGS moves into adulthood.

A cognitive decline is fairly common in people with LGS and is seen with increased or continuous epileptic activity. The cognitive problems seem to be concentrated in prolonged information processing and delayed reactions to stimuli.2

The mobility of a person living with LGS may change as he or she begins to increase in height and weight.

Daily tasks such as bathing and transportation can become more of a challenge for caregivers. For individuals with LGS who become wheelchair bound, changes to the accessibility of the home and vehicle may be necessary in order to accommodate the wheelchair.1

Learn how to prepare for adult care of people with LGS

See more from this series

 

NEXT: Caring for the Caregiver

References:

  • 1. LGS Foundation. Adults and LGS. LGS Foundation Web site. http://www.lgsfoundation.org/adultsandlgs. Accessed September 13, 2016.
  • 2. Brown L. LGS (Lennox-Gastaut syndrome). Child Neurology Foundation Web site. http://www.childneurologyfoundation.org/disorders/lgs-lennox-gastaut-syndrome/. Accessed September 13, 2016. 

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