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Receive educational information that can help you care for your child or loved one with Lennox-Gastaut syndrome (LGS).
As a child with Lennox-Gastaut syndrome (LGS) grows into adolescence and then adulthood, he or she might experience unique challenges and changes. These changes, in turn, will have effects on decisions around overall care. Making the move from a pediatric neurologist's to an adult neurologist's care, for instance, can be challenging for both the person living with LGS and the caregiver.1
This section of LivingWithLGS.com provides an overview of the transition process. But as you'll learn, there is more to transitioning than just a change in doctors. The pages that follow highlight important areas of focus.
It's important to begin the process early so that by adolescence, everyone is prepared for the inevitable changes—and the process.1
Transitioning is not a single event. It's a process.1
Successful transition depends on close coordination among the key players involved: the pediatric neurologist, the family, the person with LGS, and the adult neurologist. All parties must commit to making transition planning a basic part of providing care, not something that comes into play only when a person living with LGS turns 18.1
This Web site contains information relating to various medical conditions and treatment. Such information is provided for educational purposes only and is not meant to be a substitute for the advice of a physician or other healthcare professionals. You should not use this information for diagnosing a health problem or disease. In order for you to make intelligent healthcare decisions, you should always consult with a physician or other healthcare provider for your, or your loved one's, personal medical needs. All quotes included in this Web site represent the individual experience of some doctors, some patients, and their caregivers. Individual responses to treatment may vary.
This site is intended for residents of the United States only. Any products discussed herein may have different product labeling in different countries.