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Receive educational information that can help you care for your child or loved one with Lennox-Gastaut syndrome (LGS).
Because children experiencing epileptic seizures can hurt themselves, it is important to think of safety measures that can prevent injury. Check your child's room for furniture or sharp objects that could cause injury in the event of a seizure. Children with Lennox-Gastaut syndrome (LGS) often wear safety helmets to prevent injury during epileptic seizures.
Things to consider when purchasing a helmet:
Make sure to speak to your child's doctor about finding the right type of helmet to keep your child safe. Some professionals suggest avoiding bicycle, boxing, football, and baseball helmets because they do not meet all the criteria above.2 In general, hockey helmets are a good choice.
Caregivers may consider custom-fitted helmets, such as those made by Danmar Products, for people with mental and physical challenges. There may also be locally based companies and resources that offer appropriate solutions.
If your child uses a wheelchair, your home may need construction work to become accessible. This means more than putting a ramp on the front porch. Wheelchair accessibility may require widening doorways, rearranging furniture, and possibly remodeling certain rooms to allow for better access.3 For example, safety bars in the bathroom may be needed to assist your child getting in and out of the bathtub.4
Modest changes to your home can make life easier and safer. For example:
Changing your home is a big step in adapting to life with LGS. But it is just one example of the ways LGS requires your family to be flexible. As families adjust to living with LGS, they must remember to find ways to help each other deal with the stress.
Modest changes to your home can make life easier and safer.
This Web site contains information relating to various medical conditions and treatment. Such information is provided for educational purposes only and is not meant to be a substitute for the advice of a physician or other healthcare professionals. You should not use this information for diagnosing a health problem or disease. In order for you to make intelligent healthcare decisions, you should always consult with a physician or other healthcare provider for your, or your loved one's, personal medical needs. All quotes included in this Web site represent the individual experience of some doctors, some patients, and their caregivers. Individual responses to treatment may vary.
This site is intended for residents of the United States only. Any products discussed herein may have different product labeling in different countries.