Shining a light on Lennox-Gastaut syndrome (LGS)
With such a small patient population, there's just not a lot of information regarding LGS available to parents and caregivers. The LGS Forum aims to change that by bringing attention to this rare and severe form of epilepsy — as well as news and information to those affected.
The Ketogenic Diet as a Treatment Option
Our first installment of the LGS Forum features Eric Kossoff, MD, Medical Director of the Ketogenic Diet Center at Johns Hopkins Hospital in Baltimore. Dr. Kossoff provides an overview of the ketogenic diet and how it works.
We also learn about the experience of one of his patients diagnosed with LGS.
Featured in the ketogenic diet video:
Eric H. Kossoff, MD
Associate Professor of Neurology and Pediatrics, and Medical Director of the Ketogenic Diet Center at Johns Hopkins Hospital in Baltimore. Dr. Kossoff lends his professional expertise to our discussion. Dr. Kossoff is a paid consultant of Eisai Inc.
Nadiya, Jill, and David
Nadiya is a beautiful 7-year-old diagnosed with LGS. She started the ketogenic diet at the age of 2.
Jill and David are Nadiya's parents. They share Nadiya's journey with LGS from before diagnosis to the present. They inspire with their matter-of-fact, laser-focused approach to Nadiya's illness, and talk about challenges, successes, insights, tips, and more in a wide-ranging discussion.
Our moderator, Marlene, expertly guides the conversation and helps participants share their experiences and expertise.