A diagnosis of Lennox-Gastaut syndrome (LGS) can lead to feelings of worry, fear, and concern about the future.
With our educational videos, we hope to provide some helpful information for families affected by LGS. Of course, the information in these videos is not meant to replace the advice of healthcare professionals, but to complement it.
We hope these videos will help facilitate meaningful conversations with your healthcare team.
The LGS Forum
A place for parents, caregivers, and LGS experts (including pediatric and adult neurologists, dietitians, and nurses) to share insights, professional and personal experiences, information, tips, and more. Look for videos, commentary, helpful links, and more to assist families and their loved ones living with LGS. The LGS Forums are hosted by Marlene O'Haire.
LGS Documentary
Minute by Minute is a documentary about living with LGS. It is intended to raise awareness of the disease — one of the most complex epileptic disorders to treat and manage. The documentary features two families living with LGS, and offers informed perspectives from physician experts and patient advocates.
Navigating the Storm
Navigating the Storm is a series of educational videos that supports those affected by LGS. The videos provide parents and caregivers with tools to help them cope. The series includes an overview of LGS, tips on proper sleep hygiene, and advice on how to address behavior challenges. It features physicians J. Wheless, MD (left) and T. Glauser, MD (right). Both are paid consultants of Eisai Inc.
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