Ties of strength...

Uniting the LGS community with information and support

When your child has epilepsy, it can be frightening for you as a parent or caregiver. Hearing that your child has been diagnosed with Lennox-Gastaut Syndrome (LGS) brings its own questions and concerns. Thoughts of helplessness and frustration can make you feel as if you are coming loose, unraveling. You need to be strong… for your child.

LivingWithLGS.com is here to help provide a bond of strength at a difficult hour, when your child's world is coming undone. Strength comes from information, understanding, and community. We connect parents and caregivers of children with LGS with the resources they need to be strong — information about LGS, treatment options for those who have LGS, and support for families.

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What is Lennox-Gastaut syndrome?

Lennox-Gastaut syndrome (LGS) is a severe form of epilepsy, with seizures usually beginning before 5 years of age. LGS accounts for only 2-5% of childhood epilepsies, and occurs slightly more often in boys than girls. Unfortunately, this epilepsy syndrome usually persists through childhood and adolescence to adult years. The prognosis for individuals with LGS varies. While many new treatments exist, there is no cure. Complete freedom from seizures is very unusual.

Living With LGS

Lennox-Gastaut syndrome offers many challenges for parents and caregivers. The difficult task of raising a child is complicated by problems stemming from LGS. Find out how to LGS may affect family, school and home life. Read more >

About LGS

Although many people are familiar with epilepsy, LGS is not a well-known disorder. Most people are not familiar with the term unless a child or loved one has been diagnosed with it. Discover the facts about LGS, including seizure types and behavioral issues associated with it. Read more >

Treating LGS

Because children with LGS may exhibit a number of different types of seizures, there is usually no single antiepileptic medication that will control seizures. Learn about medications commonly used to treat seizures associated with LGS, as well as diets and surgeries that could help control seizures. Read more >

This Web site contains information relating to various medical conditions and treatment. Such information is provided for educational purposes only and is not meant to be a substitute for the advice of a physician or other health care professionals. You should not use this information for diagnosing a health problem or disease. In order for you to make intelligent health care decisions, you should always consult with a physician or other health care provider for you, or your loved one's, personal medical needs. All quotes included in this Web site represent the individual experience of some doctors, some patients, and their caregivers. Individual responses to treatment may vary. Actual identities have been changed to protect individual privacy.

This site is intended for residents of the United States only. Any products discussed herein may have different product labeling in different countries.

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